Author: Karen Putz

  • Rally for SB 68 Hearing Aid Insurance Bill

    Today, I’m heading down to Springfield for a meeting to discuss SB 68 which would provide insurance coverage for hearing aids for Illinois residents of all ages.   A group of us will be meeting with the opponents of the bill to hopefully reach a common ground in pushing a bill through for insurance coverage for hearing aids.  Surprising to me is that the Illinois Academy of Audiology is one of the opponents for this bill.  It is my understanding that they prefer to limit coverage to children only.

    I know that there is a lot of fear that insurance premiums would rise outrageously if we were to pass this bill.  I honestly don’t believe that will be the case.  The bill is very reasonable– providing $2,500 coverage per ear, once every five years.

    Reasonable.

    Many insurance companies are now at the point where they cover bilateral cochlear implants without the long battles of yesteryear.  One of my friends obtained bilateral cochlear implants not too long ago and she shared that the bill came to $225,000.  She loves her implants and is enjoying all the new sounds she’s hearing each day.  I am thrilled for her.  I just want the same coverage for my family.  There are ten of us with hearing aids.  The hubby and I are wearing hearing aids that could use some repair.  He’s got a broken T-switch.  I have a broken battery door.  We both could use new hearing aids but we’ll have to flip a coin to decide who gets one first.  We hold off, because this is the last year our children quality for state aid for their hearing aids.  What if one of them goes out? 

    Consider this– if all of us were to get new hearing aids at once, it is a tiny, tiny fraction of the cost of all of us getting bilateral cochlear implants.  Just something to think about when we talk about insurance coverage. 

    Tomorrow, there will be a rally down in Springfield, hosted by CCDI and INCIL at noon.  Meet at Adams Street, by the President Abraham Lincoln Hotel & Conference Center, 701 East Adams Street, Springfield, IL.  Tomorrow is the deadline for this bill to be brought to the floor.  What does this mean?  It means that each one of us has to take some time TODAY to call your Senator and tell them you want this bill voted on and passed.

    Here is a list of all the Illinois Senators and their contact information:  Illinois Senators

    Here’s how to find out who is your Illinois Senator: Find Senators by Address

    The deadline is April 30th to get this bill to the floor and voted on. Call, write, email, fax, visit YOUR Senator and the following Senators (thank the co-sponsors!):

    Here’s the contact information for the Senators:

    Senator Ira Silverstein (Bill sponsor) isilverstein@senatedem.ilga.gov     217-782-5500

    Senator Jacqueline Collins (Bill co-sponsor) : senatorcollins@sbcglobal.net 217-782-1607

    Senator Dan Cronin (Bill co-sponsor): 630-792-0040

    Senator Martin Sandoval (Bill co-sponsor): (708) 656-2002

    Senator A. J. Wilhemi (Bill co-sponsor): (217) 782-8800

    Senator Don Harmon (Bill co-sponsor): (217) 782-8176

    Senator M. Maggie Crotty (Bill co-sponsor): (708) 687-9696

    Senator William Haine (heads the subcommittee): whaine@senatedem.ilga.gov    217-782-5247

    Senator Duffy: dan@senatorduffy.com  217-782-8010
    Senator Forby: gforby@senatedem.ilga.gov     217-782-5509
    Senator Hendon: ihammons@senatedem.ilga.gov      217-782-6252
    Senator Burzynski: senatorbrad@verizon.net     217-782-1977
    Senator Munoz: amunoz@senatedem.ilga.gov      217-782-9415
    Senator Syverson: info@senatordavesyverson.com      217-782-5413
    Senator Hayes: jhayes@sentedem.ilga.gov   

    The time is now to get this bill passed.  Let’s make it happen.

  • Marlee Matlin Signs Her Book, “I’ll Scream Later”

    What a weekend!

    We headed out to the Oak Brook Borders on Friday night to meet Marlee Matlin at her book signing.  Marlee crafted her autobiography “I’ll Scream Later” as a tell-all book and judging from the headlines of the articles swimming around, her book has revealed some surprising secrets:

    Marlee Matlin Book:  William Hurt Abused Me

    Marlee Matlin Reveals Abusive Relationship

    Babysitter’s Abuse Lead to a Life of Drugs, Violence

    There was quite a crowd of people that night.  Marlee began the evening by reading an excerpt from her book with Jack Jason voicing.  Each of us had received wristbands when we arrived and we went up in groups of 50.  Marlee looked really beautiful and was extremely gracious to everyone.  I was amazed at her stamina, she signed book after book without faltering and considering that this was her fourth book signing in a week, it was amazing to see how she kept it all up until the very last book was signed.

    I brought my Z-340 videophone with me and connected with Tim Rarus (Deaf President Now leader/ VP of Sales) and Sean Belanger (CSDVRS CEO) while I was waiting in line and they had a quick opportunity to chat with Marlee as well.  It was so neat to see the technology at work– who could have envisioned this a few years ago? 

    (Photo courtesy of Dino Lomanto)

    Yes, those are my younger two kids with me–David was too busy chatting with his friends to get in line.  On the way home, I started reading the book and didn’t put it down until one in the morning.  Later, I found out that many of my friends did the same thing after they left the bookstore– one gal stayed up through most of the night until she finished it. 

    I tried to figure out what was so compelling about this book, this peek inside of the life of undoubtly the most famous actress who happens to be deaf–what kept me turning page after page of this book?  I came away with a sense of awe, because despite the dark chapters and the very rough parts to read through, Marlee has “chutzpah.” (Translation: bold guts!)  She has that fiesty spirit inside that allows one to accomplish dream after dream.  That’s what made this book and the story of her life stand out.

    My favorite line from the book is simply this: 

    My life is rich and I am blessed, and I am grateful.   That I am Deaf is just a footnote.  It is a part of who I am, but far from all of who I am.

    That Says It All

  • It’s Crazy Hair Day…

    It’s Crazy Hair Day at school.

  • The Best Part of the Spring Break Road Trip

    We arrived at the Marriott Grande Ocean hotel late in the afternoon on Sunday, March 29th.  The ocean stretched for miles at the edge of the hotel and it was hard to believe that we had just left a cold Chicago behind.  It was very windy on the beach and there were very few people out and about.  As I was snapping pictures of the kids, an older couple stopped their bikes and asked if we wanted a family picture.  The wind was quite fierce and sand was blowing everywhere.  They took two pictures and struck up a conversation.

    They owned a time share on the beach and had been coming to Hilton Head for 31 years.  The couple looked like they were in their mid 70s.

     “What keeps you coming back to this island?” I asked. 

    “Oh, we just love it here!  There’s so much to do and it’s just beautiful here.  We ride our bikes several miles each day all over the beach and the island.”   They gave us some tips of where to go and places to eat.  From the smiles on their faces, it was easy to see that they enjoyed themselves.  I could see why they enjoyed the island–it was indeed a beautiful place to be.

    Soon after we left the beach, we jumped into a hot tub, joining another family with three generations that was lounging there.  None of us had our hearing aids on at that point but we managed to chat.  The family was spending their second year on the island and they had come back to the same hotel.  It was amazing to see how the island drew back people– but by the end of our trip, we held the same feeling of wanting to visit the island again.

    The very next day turned out to be one of the most memorable parts of the trip:

    Flying Kites At the Beach.

    Kayaking in the marshland
    Kayaking in the marshland
  • Road Trip Across America

    Yes, we’re back and I’m finally sitting down to share.

    This year, the kids had the same spring break.  Last year we had the kids in three different schools and on two different spring breaks.  So when the kid’s calendars lined up this year and the hubby took a volunteered week off due to job cuts at work, we figured it was a sign that we should grab the week and do something.  I didn’t count on starting a new full-time job in January, but we managed to incorporate the job into the spring break. 

    I planned to have a CSDVRS booth at Deafest in Carbondale at the end of the week, so we decided to take a road trip to Hilton Head Island.  My sister works for Marriott, so we were able to snag a two-bedroom condo at a rock bottom price right next to the ocean. 

    We stayed in Kentucky the first night and went to the Slugger museum the next day.  The kids and the hubby voted to eat at Hooters.  Sadly, the chicken was a disappointment, but the two older kids walked away with Hooters t-shirts.  That’s right, they decided to spend their travel money on trashy t-shirts. 

    We headed out to Atlanta and stayed overnight at the Kurt’s house.  You may recall Karen Kurt from my previous BookHands post.  The Kurts have a beautiful house and they definitely do not miss the Chicago weather.  For one brief moment that night, the kids said, “Hey, why don’t we move down here?”  We are planning to go back and visit again because we didn’t hit the hot tub that they have sitting in their backyard.

    We arrived in Savannah, Georgia in the afternoon and decided to eat at Paula Deen’s restaurant.  The sign on the front said it was booked for the day, but the hostess said she could get us in.  On Sundays, the Lady and Sons only serves buffet and the meal is quite southern.  Paula’s famous fried chicken, mustard greens, black-eyed peas and that baked macaroni and cheese were some of the things I recognized from her shows.  For dessert, we had to choose from one of four items but they all looked so good that I told the waiter that I couldn’t possibly choose just one.  He winked and placed all four desserts down.  Good gawd, the butter cake is amazing.  I don’t even want to know how much butter is in there, it was worth it even if it shortened my life by a day.

    Part two is coming tomorrow– stay tuned to find some neat people that we met on the trip.

  • Steak ‘n Shake, The “Other” Side of the Story

    It’s amazing to me that a year later, people still remember the Steak ‘n Shake incident where my son and I were denied service at the drive-thru window of the Bolingbrook Steak ‘n Shake.  I still receive comments from time to time, and with the exception of two that were literally nasty comments, I’ve published every one of them.

    Carol, a lady who bills herself as the friend of the still-employed trainer, left the following comment recently:

     

    As a friend of the SnS manager who didn’t serve you, I just wanted to throw this out there-

    Obviously what he did was wrong, since this is America and he works for a corporation and you can’t just not serve people. It would be great if SnS had a better drive thru board to better help assist all types of customers that need extra assistance for whatever reason. I’m sure that’s not in their budget at this time, however.

    From his point of view,I believe, the reason he didn’t serve you is because he through you were being very rude in the drive thru. When you work in a drive thru, you get many, many, many rude customers. Sometimes it can really push you close to wanting to snap on someone, as he did you. I believe he told you as you pulled up to the window that “he wasn’t going to not serve you because you were deaf, he was going to not serve you because you were being rude.”

    I guess what I’m really getting at is that there is another side of the story out there that doesn’t really get much mention, and this seems like a classic case of a manager dealing with a lot of stress on his shift and snapping on the wrong person. Not the right thing to do by any means, but maybe it really has less to do with deafness than meets the eye.

    Dear Carol:

    Let’s go over this one more time, shall we?  I pulled up to the drive-through window and when the window opened, I explained that I could not use the speaker because I couldn’t hear and ordered two milkshakes.  I was told to go around again.  The trainer probably figured I just couldn’t hear clearly.  I calmly explained again why I needed to give my order through the window and why going around again wasn’t the solution.  The trainer kept insisting that it was company policy and that I needed to place my order at the speaker. 

    Yes, Carol, at that point, I’m sure on the company’s videotape, it must have looked like a rude customer was ripe and ready for an argument.  After all, like every other customer, all I wanted was for the guy to do his job, which was to take my order, fill it, and send me on my merry way.  Instead, I had to explain why an accommodation was needed at the drive-thru window and defend my reasons for not being able to use the speaker.  The trainer had chance after chance to change his method of delivering customer service and fill the order.  Instead, HE chose to threaten the cops, shut the window (not once, but twice) and leave me empty-handed.

    Let me remind you that he failed to follow the Steak ‘n Shake corporation’s customer service delivery model.  He had several chances to redeem himself as an employee and satisfy the customer, but he failed to do so.  If the company had a policy in place for customers with disabilities as well as a drive-thru modification, chances are good that my son and I would have drove off that day happily enjoying our milkshakes.

    Yes, Carol, there are two sides to every story, but when it comes to discrimination in the drive-thru, this story is pretty straightforward:  My son and I were denied equal right to the same service that customers without disabilities experience in the drive-thru.

  • Yes, It Is Time for Insurance Coverage for Hearing Aids

    There’s a small, passionate group of people in Illinois who are working to get the state of Illinois to pass a bill in the Senate that would provide insurance coverage for hearing aids.

    For people of ALL ages.

    Not just for children, like many other bills in other states.

    If you live in Illinois, this post is just for you.  The time is NOW.  Yes, now–to call your Senators, fax a letter, or send them an email and tell them:  “Please support SB 68 which provides insurance coverage for hearing aids for people of all ages in Illinois.”

    That’s all you have to tell them, that one, simple little line.

    We have a shot at this.  Senator Ira Silverstein and Senator Jacqueline Collins are sponsoring this bill and they are very supportive of it.  Senator William Haine is the chairperson of the subcommittee and he is hard of hearing.  A group of us went downstate and testified in front of this subcommittee on March 11th.  You can read more about it here:

    Chicago Moms Blog: The Time is Now for Hearing Aid Insurance Coverage

    Do you feel the same way? 

    Then let’s take some action.  Here’s the contact information for the Senators:

    Senator Ira Silverstein (Bill sponsor)   isilverstein@senatedem.ilga.gov  217-782-5500

    Senator Jacqueline Collins (Bill co-sponsor) :   senatorcollins@sbcglobal.net  217-782-1607

    Senator William Haine:  whaine@senatedem.ilga.gov  217-782-5247

    Senator Duffy:   dan@senatorduffy.com  217-782-8010
    Senator Forby:   gforby@senatedem.ilga.gov  217-782-5509
    Senator Hendon:    ihammons@senatedem.ilga.gov 217-782-6252
    Senator Burzynski:  senatorbrad@verizon.net 217-782-1977
    Senator Munoz:   amunoz@senatedem.ilga.gov  217-782-9415
    Senator Syverson:  info@senatordavesyverson.com  217-782-5413
    Senator Hayes:   jhayes@sentedem.ilga.gov

    All it takes is a small, determined group of citizens to change the world. 

    Just like Margaret Mead said.

  • Hearing Aid Insurance Coverage–Not Just for Children

    A small group of dedicated parents and deaf/hard of hearing adults met last year to create a bill that would provide hearing aid coverage to deaf and hard of hearing individuals of all ages.  No other state has successfully passed a bill that would mandate insurance coverage for hearing aids for all ages.  Most of the states with coverage either pass a tax deduction or limit the coverage to children only.

    Senate Bill 68 was introduced in the Illinois legislature by Senator Ira Silverstein.  The original bill provided coverage for all ages up to $2,500.  The bill currently has two amendments attached to it that changes the original bill and turns it into a bill providing coverage for children.

    See this video that Dennis O’Brien produced that explains more:

    I personally do not support the amendments that are attached to this bill.  Here’s why:  I believe that every deaf and hard of hearing individual should have access to hearing aid insurance coverage regardless of age.  The proposed coverage, $2,500 is very reasonable.

    One of my friends recently underwent bilateral cochlear implant surgery.  The total bill came to $225,000.  Her insurance company paid every penny of it.  She is happily enjoying the new sounds that she’s learning each day.

    My family has ten hearing aids and we have no insurance coverage at all.  Should we choose to pursue cochlear implants, the bill would easily reach over a million dollars.

    How many hearing aids would that cover, for the rest of our lives?  The cost does not come anywhere close.

    Isn’t it time to provide insurance coverage for hearing aids?

    Take just five minutes to call your local Senator and Ira Silverstein ((217) 782-5500) and tell them that you support the original Senate Bill 68 and would like to have it passed without the amendments.

    Yes, indeed, the time is NOW to make this happen!

  • The Midwest Academic Bowl, Z-party and Gallaudet Alumni event

    I’m up in Delavan, Wisconsin with my friend Sue.  We’re watching our sons compete in the Midwest Academic Bowl hosted by Gallaudet and the Wisconsin School for the Deaf.  This is David’s second year competing for Hinsdale South and Alex’s first year with the Illinois School for the Deaf.  The two boys have known each other since they were babies, born just a week apart.  Today is the second day of the competition which begins at eight this morning. 

    While my kiddo is competing, I’m up here working for CSDVRS at the same time.  Last night, we hosted a gathering of local deaf and hard of hearing families for a pizza night.   The Z-340 was hooked up to a large TV and people took turns trying it out, making calls and ordering extra pizza as more families arrived later in the evening.  Hope Turpin, who specializes in VCO (voice carry over), showed how to make calls using voice to talk directly to the hearing caller.  Two of our Wisconsin outreach specialists, Scotty Franz and Gina Sutton joined us too.

    Earlier in the day, I accidently dropped my Z-340 on the wooden floor when I had it on my lap during a break in the competition.  I was in the middle of answering a call from Hope, who was setting things up at another location.  My heart was beating when I picked it up, thinking that I broke it.  Thank goodness for that durable cover which kept it intact. 

    After our event, we headed over to the Delavan Deaf Club to join the Gallaudet Alumni party.  We met up with Dean, Susie and Ryan Kelly who also work as Outreach Specialists.  Dr. Davila was there and he talked about the students who were competing in the Academic Bowl (“they’re smarter than I was at that age!”) and the long range plan for Gallaudet.   I was really impressed to see the amount of giving that the alumnis put forth each year, between $200,000 to $400,000 each year.  The club auctioned a few items, including a Gallaudet blanket that was part of a fierce bidding war between an older couple and a younger alumni.  Dr. Davila was caught up in the auction fever and he whipped off his tie to auction that off.   Susie Kelly suggested that everyone contribute toward the tie to keep it on display at the club.  Everyone agreed and the money flowed.  Dr. Davila signed his tie and handed it over to the club. 

    I’m heading back to WSD to watch my son and then heading to Milwaukee for another CSDVRS event tonight at Kozzies.  It has been fun getting to know the people from Wisconsin.  I’ve discovered that not everyone is a Packers fan and some admit to supporting the Chicago Bears!

  • Are You in the Deaf/Hard of Hearing Closet?

    For many years, I hid in the deaf/hard of hearing closet. I wasn’t comfortable dealing with the lone hearing aid that was given to me in fourth grade. During the school day, I hid the hearing aid under my thick hair and pulled off some impressive bluffing maneuvers. I would smile and nod along to conversations during lunch time and at recess.  I did so well that the teachers often told my Mom that I was getting along “just fine in the classroom despite my hearing loss.”

    When I look back at my early years in elementary education, I know that I had hearing loss long before it was diagnosed. I remember looking around after getting off the monkey bars, only to find all the kids lined up against the wall, ready to go back inside. I was the last kid left on the playground and I learned to calculate the time left at recess so I wouldn’t be the last kid in. I remember the kindergarten teacher coming over to tap me whenever nap time had ended. I quickly learned to watch the kid next to me and when they got up, I got up.

    In second grade, the teacher had a reading session and introduced the book, “Curious George.” I couldn’t get the word “curious.”

    “Erius George,” I repeated after her.

    No, she said. She repeated the word and then went on reading. I stared at the book, seeing the man with the yellow hat and the brown monkey. I had no idea what the book was about or the interactions between the man and the monkey. It wasn’t until I had my first kid and obtained a copy of “Curious George,” that I finally learned what the story was about.

    There are a lot of chunks of my life like that.

    I’m sure to my teachers, I appeared to be doing pretty good in school. In seventh grade, we had a class where we each took turns reading a paragraph out loud. I would calculate the number of students ahead of me, count the paragraphs in the book and figure out where I needed to start reading. Sometimes I would get lucky and see someone close to me reading with their finger on each word and if I listened, I could follow along with the words. Then when it was my turn, I’d start in on the correct paragraph.

    But inside of me, I know my stomach was churning and I was tense in trying to keep up. There were thousands of situations all through the school day, in after-school activities or on the playground where I was hyper-alert in trying to follow it all.

    I’m sure today, there are kids still going through this routine– this coping skill that gets them through the day as “normal” as possible.

    I can remember the day I came out of the deaf/hard of hearing closet. It was actually in college. I rode the bus with my hair pulled back in a pony tail and my hearing aid perched on my ear.

    And I didn’t care.

    For the first time in my life, I didn’t care who saw my hearing aid in public.

    That was a turning point for me.

    Over the years, I’ve met some people walking around with that closet around them.  Any talk about being deaf or hard of hearing is a painful thing. They know that elephant in the room is there and they step aside so they can talk around it.

    One only has to type in “deaf mom” on Google and they’ll quickly learn that Karen Putz and DeafMom go hand in hand. There would be no hiding the fact from a potential employer nor would I even try. Lately, I’ve been receiving emails from other bloggers, who share that they’re hard of hearing or deaf, but they don’t want to highlight that in their blogs for various reasons. Some feel that their hearing status has no bearing on their life. Others feel it’s a sign of weakness and they don’t want to share that.

    “I don’t hide it in person,” says Holly Kolman. “It’s just that the internet is forever.”

    After chatting with Holly, I learned that she had never published anything online about being hard of hearing. She was willing to discuss it for the first time online on this blog.

    “Life with a hearing loss means everything is harder,” she explained. “Almost everyone takes it for granted that people can hear…it’s like expecting someone with normal breathing to understand what asthma feels like–it’s impossible. It is very socially isolating. People think that you’re ignoring them when you don’t answer and they take it personally.”

    Holly recalled that some of her teachers did not understand what she was going through in the classroom. Over the years, they told her, “You hear what you want to hear.”

    I’ve been told that too. 

    In sixth grade music class, we had a test where everyone had to listen to a recording on tape and then write down the beat times.  The teacher noticed that I wasn’t writing anything down.  She tried to explain what I needed to do.  Again, I tried to listen along.  Again, there was nothing for me to write down. 

    The teacher was upset.  To this day, I still remember her words:  “Karen, you need to turn your hearing aid up and listen!” 

    I told my Mom about this incident and she marched to the principal’s office the next day and explained why I couldn’t follow the music.  The principal called in the music teacher and for some reason, he made me issue an apology to her.  I didn’t understand why, but there I was, saying I was sorry.  To substitute for the missed test, I had to write two 500-word essays on the piano and the guitar–over Christmas vacation.  While my friends were enjoying a break, I was writing reports.

    I think we’ve come a long way in terms of awareness, but I think we still have a ways to go to break down those closets that are still walking around out there.